A 13-year-old schoolboy struck with a rare condition which forced him to live with his head hanging to one side has had his life transformed following a major operation.

Mahendra Ahirwar’s neck muscles are so weak his head hung at a 180-degree angle, leaving him requiring help to carry out basic day-to-day tasks.

His story compelled a complete stranger, Julie Jones, from Liverpool, to help raise £12,000 for the operation – and the operation has been a huge success.

His dad Mukesh told MailOnline:

“It’s a miracle. He looks great. His neck is straight; and his life is so very different.
“He’s in a good place. It was heart breaking to see him before. We were on the brink of losing him.
“When his neck was bent he was too shy to speak but now he feels like a normal person and we can see his confidence levels growing. He is very happy now.”

Before the operation, his mum Sumitra, 36, said that it would be better if her son died should the operation not be a success.


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