Brandon, said:’After our second ultrasound at 17 weeks, when we found out he was a boy, we knew something was up when the ultrasound technician went towards his head and went very quiet.’
‘Brittany got the call the next day from the doctors saying there was a concern with the MRI results. She was in tears and told me there was an issue with the baby. Of course, I lost it at work so they sent me home and the rest of the day was a blur truly.’
For the next few weeks, the anxious couple were transferred between doctors and given five possible conditions of what it could be. Spina bifida, Dandy-walker syndrome and Joubert syndrome
Brandon said: We went home that night thinking if you are telling us to abort, we would never know what Jaxon could have been, if he could have survived.’
‘Who are we to decide? We were given a child, we are given a chance and we have to be his voice.’
‘We did everything we could to give him a fighting chance and all he’s done since being born is fight right back.’
Brittany said: ‘I was devastated. It was heart breaking because something I always wanted my whole life was happening, but then I was told there was a possibility it might be a stillborn.
‘It took all the joy away from me. The happiness that normal women have when they are pregnant – I had none of that.’
The miracle baby survived the pregnancy and was born by caesarian section on August 27, 2014 weighing 4 pounds.
Brittany said: ‘It is always in the back of my mind. I’m very aware that today maybe his last day. I’m aware tomorrow he may not be here.’
‘I try to stay positive 99 per cent of the time but there is that 1 per cent because I know the reality of the situation – that we’re probably going to outlive him.’
Jaxon’s father said: ‘He thrives with his mom, that one-to-one stimulation that no other therapy can give. If we can keep Brittany at home, giving him that 24/7 care is truly priceless and that’s what his account allows us to do.’
Brittany said: ‘It’s all been so overwhelming in a positive way because we can’t go anywhere without someone stopping us, and saying, ‘hey, what’s your story?’ or they would have seen his picture and say, ‘hey, look it’s Jax Strong!’ his nickname! It’s truly incredible the amount of people he has had an impact on.